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Dementia Life Family Impact Study 2026

The Dementia Life Family Impact Study

What Are We Studying?

We know that a dementia diagnosis impacts more than just the person diagnosed. This is the reason why Dementia Life exists. We want to be able to properly measure, quantify and shout about the real world impact that having a family member diagnosed has on a family.

Our study focuses on three core areas.

The Financial Impact

A dementia diagnosis can have a devastating impact on a families finances. This can include lost wages, care costs and home modifications.

The Emotional Impact

Emotionally, having a family member, or a friend, with dementia is incredibly tough to handle. While it's difficult to truly express the emotional impact a dementia diagnosis has - this study will attempt to quantify that.

The Social Impact

Withdrawing from social events. Sending your excuses or not doing the things you love. All can, and do, happen post-diagnosis. We aim to measure the varying levels of social isolation that dementia can cause.

Key Information

Who Can Take Part?

Anyone with a connection to dementia can take part in the study.

Immediate or close family, distant relative or friend. The study caters to everyone that a dementia diagnosis can touch.

All responses will be kept anonymous

How Long Does It Take?

We expect the survey to take around 15 Minutes to complete

Our study aims to balance your time and being in depth enough to gather meaningful information.

Why Take Part?

The results of this study will be used to identify gaps in local services. We aim to publish the findings of this report, generate media coverage and push for systemic, long term change to ensure nobody has to face a dementia diagnosis alone.

A Gift For You

We're offering 50% off our Annual Community Supporter plan to anyone that completes the Dementia Life Family Impact. as a big "Thank You" for helping our missions.

Fill Out The Form Below to Take Part